Covid-19 Isolation with my Three Year Old Special Care Baby!

Before we begin, neither me or my daughter have coronavirus or any symptoms! Lol please don’t panic if you’ve seen me or my daughter in the last few days, we are beginning our self isolation (reluctantly) under instruction from our school and GP.

Soo, it’s been a minute. I’ve been trying to keep my head above water with the last year of uni here and Zariah’s forever changing needs, and just ended up abandoning the blog :(. It hasn’t been forgotten though, so since we have begun our isolation, I thought why not, since I’m not gonna be going anywhere for a while -__-.

So this morning (Wedensday 18th March) was my first morning back as a parent since my trip to Amsterdam. When my partner and I left London on Friday 13th, I was told that it’s fine to travel, and it’s fine for Zariah to keep going to school as the virus “wasn’t affecting children in the same way it’s affecting adults”. Having heard that from both the paediatrician and the epilepsy doctor that week, I felt comfortable leaving Zariah with her dad, allowing her to go to school each day. My mum sent me a website allowing you to check how many confirmed cases are in your borough (message me if you want it), and I checked whilst in Amsterdam and there were 5 confirmed cases in our borough out of almost 300,000 people. I felt fine. By the time we came back, we realised sh*t had got real serious in the space of a few days, there were 20 cases and today there are 22. Shops and schools closed in The Netherlands, and the death toll in the UK was rising. I tried to follow the UK news in Amsterdam and saw that public transport was empty, people were staying home, flights were being cancelled and shop shelves were emptying. When I got back to England on Tuesday, the government advice had changed. I started to panic.

It sounds harsh, and my heart is with anyone and everyone who is affected by the corona-virus, but a part of me felt a little bit at ease when I was hearing that it was only affecting the elderly, particularly people over 70 with underlying health conditions. I just thought it meant my daughter was okay, but then the government elaborated on it’s advice and said people under 70 with health conditions and chronic illnesses such as cerebral palsy are at increased risk too, and from that point my heart slightly dropped.

I wasn’t going to take Zariah to school today, but then they reassured me that everything was fine and it was okay for her to come in, so I started to get her ready. About an hour later, the assistant headteacher called me saying that they’ve reviewed their policy on corona-virus, and because Zariah is at increased risk of having a more severe reaction to the Covid-19 virus, she can’t come to school for the rest of the term, starting tomorrow. She then proceeded to tell us to stay home and isolate Zariah, as if she catches it, it could be fatal. This was fair enough to be honest because once Zariah gets a temperature, she gets serious seizure which are really difficult to stop/manage, but from that point I just thought “crap, how am I going to keep my 3 year old indoors for an entire month”, as the new term starts on the 20th April, and the issue might not even be resolved by then!

I have in my head organised activities, and luckily did a big shop before I went to the The Netherlands, but does self isolation strictly mean we cannot go anywhere? My daughter is completely fine, she doesn’t have a temperature or cough, or any symptoms of any illness at all. I would like to still take her outside, maybe on strolls or shopping trips, or even just to visit family, but the scariest thing is that you don’t even know if someone has it as symptoms don’t show immediately. We could spend time with someone whilst they unknowingly have it and feel fine, and we’d be f*cked before we even realise. It’s terrifying to imagine, but I honestly don’t know how we (I) will cope indoors on our own for a month. I also don’t think its very fair to keep her locked in a third floor one bedroom flat for 5 weeks. Can she use her walker outside at least? Can I take her to the park? Can I leave her with her dad and have a break for a day or two? I’m very baffled on how we are realistically supposed to do this, and I haven’t even covered work, or how I go about writing my dissertation, which is due in less than 2 months. It’s not even day one of isolation and I am beginning to panic. I’m such a planner, and this uncertainty is literally my worst nightmare.

To parents of CP and special care babies, what’s your advice/plans, and how is corona-virus going to affect you? I’m going to try and document our experiences isolating during this time of panic, and hope to find some hope/creative ideas from other parents, who always seem to come up with great ideas where they are needed. We’ve been home half a day and Zariah is hyper, has vomited on my laptop keyboard and giggled, and bit my boob twice. I’m losing patience guys loooool. Help. Me. Please.

Anyways, I’m open to suggestions! Look forward to hearing em!

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