The Back Story – Part 3 (Diagnoses and Our Journey Home)

Hey guys, it’s been a while. I think it’s just gonna be a thing where I’m thanking everyone at the start of each blog because the support and love has just been amazing. Having Zariah, and being a young mum in general, can sometimes feel quite isolating, and before coming out with our story and experiences, I felt excluded from so many things, even though Zariah is probably too young to understand or feel it.

The outburst of love has been real though, from simple messages of love and encouragement, to invitations to places, messages from organisations, and people being much more inclusive in general. My friends have been incredible as always. Thank you for everyone who has read, commented on and shared our blogs too. Who knew people on the other side of the world could be going through the same experiences?

In the last post, I got up to Zariah’s birth and shared a picture of her whilst she was in a medically induced coma. I’m just gonna explain Zariah’s diagnosis and where we are today.

Zariah is diagnosed with spastic dystonic quadriplegic cerebral palsy. It’s abit of a mouthful to be honest, we just say CP. Anyways, all that means is that her muscles and joints can be really stiff but weak at the same time. She doesn’t have complete control of all parts of her body like most people do, and things that just come naturally to others, Zariah has to learn over more time. She can’t sit up independently, walk, talk, stand, etc. and she is only just learning to roll over. There are some things that she may never be able to do (my first blog was about her physiotherapists opinion that Zariah will never walk), but I still stay hopeful. As well as the CP, Zariah has seizures, and global developmental delay (she is behind her age mates in terms of learning). I didn’t know this would be the case when she was born, I was quite clueless to be honest, but the doctors knew that this was a likely possibility, based on how bad her condition was at birth.

Anyways back to the first day. So even though when I saw Zariah for the first time she was hooked up to a load of machines, I still was hopeful about her outcome, and just thought that lots of babies stay in hospitals for a few days when they are born. At this point, although doctors may have had their suspicions about her likely disability, we had no clue. Nothing was said to us, for whatever reason, so I was just naive as hell. In the early hours of the next morning, after meeting Zariah for the first time, I was moved to the ward where they bring mothers who have just had their baby. On the first day or two it was bearable, but it became increasingly depressing being on a ward with other mothers and families who were so happy about the birth of their child. I kept hearing newb0rn babies crying and cooing at 3 or 4 in the morning. I mean, congratulations to them and all, but my baby is upstairs, I have to keep going to visit her and she hasn’t even opened her eyes to look at me yet. Wasn’t the best environment for a new mother who hasn’t really got to “be a mother” yet.

On one of first my visits upstairs to see Zariah, the nurse by her bedside gave me a flyer to explain what they were doing to her and why. It was late in the night when they gave me the flyer, so I took it back to bed with me and read it. Zariah was placed in the coma so that they could try and cool her brain. They lower the temperature of the whole body and brain, to try and prevent the brain damage from spreading. They were one of only a few specialists hospitals to be able to do this, so I guess it was bitter sweet that she was born there. When I spoke to the nurse they said that they would be cooling Zariah for 72 hours, and providing she reacts well to the procedure, they will bring her temperature back up to normal after that. Also, the flyer had those “success stories” on them, of parents who had gone through the same treatment, that had worked well for their babies. There was a lady on there who said her baby was cooled at birth, and they stayed in hospital for 4 days. Her daughter was now running up and down and a “perfect little girl” with only a small hearing difficulty. Again, these are just memories of me being mad naive, but I thought “okay great, Zariah is gonna be in hospital for 3-5 days. After the cooling, she’ll wake up, be absolutely fine, and we can go home”. That wasn’t the case.

Zariah stayed in hospital for 6 weeks. A long, seemingly endless 6 weeks. I cant go through everyday or every milestone with you because honestly, I’ll keep you here forever. But I’ll go through each significant stage, so here goes..

Day 6: Zariah had finished the cooling and rewarming, they had stopped the treatment on her brain, and they took her in for an MRI scan to try and assess the damage. I remember being with my ex on that day excited as hell, because this was the last thing they were waiting for before they would take away the medication that was keeping her asleep. I would finally be able to see my baby open her eyes after that. Excited was such an understatement man, I just thought when she wakes up we can go home. I felt like we were hitting the finish line.

Day 7: Didn’t go as I expected to say the least. The MRI scan was done on a Thursday and I spent the day with Zariah in the hospital. The doctors told me we would get the results of the MRI scan on Friday, so I came into the hospital bright and early on Friday morning, ecstatic as hell thinking today’s the day Zariah is gonna open her eyes. I came early enough for the ward round and watched everyone else have theirs, and then the doctors came to me and asked if Zariah’s dad was going to be there. That in itself should have raised flags for me but I was so excited to get the results of the MRI, I was oblivious to the fact that it could have been bad news. You know in my first blog, I mentioned I didn’t want to be too hopeful about the results of Zariah walking, cos the let down when you’re overly hopeful is epic? This was the day I was talking about. I can’t even find words to describe how positively I thought this day would go. I contacted my ex to let him know the staff were waiting for him to get the results of the MRI scan, and so he said he was coming in. That wait just felt like forever. The doctors came in twice whilst I was waiting for my ex to check where he was and how long he would be. My ex never came to the hospital everyday and wasn’t that involved in Zariah’s care or her early days anyways, I really should have realised but tbh I didn’t. He arrived and the doctors summoned us into another room.. I remember smiling with my daughters dad walking into that room, I was so giddy, and my ex said “ahh the way they’re walking us into a private room is like it’s gonna be bad news”. We both laughed at that statement. The thought didn’t even cross my mind..

We got into the room now, and there were so many other people there. The mental health midwife that I had grown to really like, like 2 or 3 doctors, the nurses that I was most familiar with and God knows what other professionals. Even then I didn’t think it was bad news, I just thought they needed to be briefed too. They then proceeded to tell me the results. Honestly, when I tell you, the doctor explaining just let off shot after shot after shot. He told me that the images they took of Zariah were horrible. He said that she will probably be disabled, will probably have a learning disability, would probably be blind, and will never smile or laugh. She will never walk or talk or do anything. He told me in much longer terms, “you’re child is going to be a vegetable”. That’s all I heard. Please no one shoot me for saying that, but if you honestly understood how brutally the message was delivered, even till this day I still think he was the worst possible man for the job. I understand doctors are supposed to just speak medically and not emotionally but that man had no soul. He didn’t even let me breathe before he dished the next blow, and another one, and another one. I don’t even know how I made it home that day. Day 7 was the day that killed me. I couldn’t even face going back in to see Zariah. I almost gave up on that day. I remember calling my mum and just screaming on the stairs. She kept trying to calm me down but all I wanted to do was scream. My ex kept trying to hug me, but even he couldn’t do a damn thing to try and get me to act like someone who still has sanity. I was screaming on the floor on the stair case in a hospital. I’ve never been so broken. Literally never. I felt so helpless, I cant even describe the low of that day to be honest. I don’t even know how I made it home. My phone was ringing off on that evening. I understood why the mental health nurse was present. She didn’t need no briefing lol, she was there to make sure I didn’t go and throw myself off a building. That whole day is a blur. I cried and cried and cried. I don’t know how I made it to the next day but here I am, living to tell the tale.

Day 10: After my day and a bit of crying, I had to get it together. My ex partner weren’t stepping up to be there beside Zariah, and I didn’t want her to be there on her own, unconscious, with absolutely nobody around her. That’s one thing I realised from early. I can’t sleep on the job. I couldn’t afford to have days off of parenting, or days of depression where I didn’t get out of bed, because no one is gonna step up and be there for her whilst I’m not. It’s literally just me and her. So I got my ass up and went back to being there everyday. Day 10 was amazing. My baby woke up. She semi opened her eyes on day 9, but was still out of it. Day 10 was the day that I got to hold Zariah for the first time, the first time I got to feel like a mother. I took endless videos to watch when I got home, that was the first high I felt since having her, I needed it tbh cos without it I don’t know if I would have been able to keep going.

We had to teach Zariah to suck, which is a natural instinct that babies have when they’re born, but mine didn’t. I mean by the end of the 6 weeks it was much better, and she was breast feeding, which felt like a major achievement, but she came home with a tube that we would feed her directly into her stomach with. It was a lot to take in. The lead up to taking Zariah home was hectic but we got there. Because the doctors knew Zariah was likely to be disabled, we had the specialist input from early. Fast forward 2 and a bit years and here we are. She has her diagnosis and we are a little bit more familiar with her disability and what it means. It’s still a learning process, I’ll admit I never new what CP was until it was on the cards for Zariah.

Despite the doctors comments, Zariah CAN see, she CAN smile and play, she’s the most sociable little baby I have ever met. Her laugh is contageous, her energy is literally never ending (it gets exhausting sometimes lol), but she has already defied the doctors in so many ways and has so many more achievements to come. I know I’ve fast forwarded ALOTTT, but honestly theres so much to mention, I don’t think it’s something I’ll be able to cover in 1, 2 or 10 blogs.

If anyone does have any questions, I’m more than happy to answer anything and everything, and want to try and be as honest as possible about our experiences so far. It’s just the beginning of our journey, and I’m hopeful for what the future holds.

Thanks to everyone for reading. Even if I can help one person feel less alone, or can give one person hope or advice, or friendship, or support, then I feel accomplished and I am happy. We’re finally up to date now, so no more history/back story blogs for now, and we can get onto our current journey. I have learnt to let go and let God, and I understand that he has a plan. As long as I have Zariah, everything is and will be fine.

The Back Story – Part 1 (Pregnancy)

Hi everyone! Before I start I just want to say thank you to everyone who has sent messages of love and support our way. I started writing this just to vent, and I didn’t think anyone would read it or care, but honestly the well wishes have meant so much. Thank you to everyone reading, sharing and supporting. Much love xxxx

Because of the way I started this, I didn’t really explain the events that led up to the “never walking” appointment and I didn’t really discuss my daughters diagnoses’. So today I’m going to start from the beginning.

April 2016. I started a job in Santander. Probably doesn’t sound relevant, and that detail doesn’t play a gigantic part in this story, but for me, it signified a positive turning point in my life. I had been with my ex (my daughters dad) for maybe 2 years or so, but the relationship wasn’t the happiest (that in itself is a whole other story). But touching on the basics, my ex had lived with me since about October 2015, and the whole time I was carrying him financially. He didn’t contribute a penny towards living costs but still had mouth to continue asking for more. Before Santander, I worked in a bookies, so I was working 60/70 hour weeks every week, to keep up with his ever increasing demands (like I said, a whole other story). Anyways, Santander signified a new start. I was excited to not be breaking my back working ridiculous hours, I was looking forward to not being exhausted all day everyday, starting at 7am and finishing at 10pm. It was the kind of job your parents would be proud of at 19 years old. I started the job in April, and was planning to go to university in September. It felt like life outside of my relationship was looking up, I was excited.

Anyways, fast forward now, in June, I found out I was pregnant. Let me be honest, the relationship, for me anyways, was coming to an end for a long time now. As each day came and went, I just felt emotionally done with the situation, and was semi ready to go. Then to find out I was pregnant. Whew chileee, it just felt like a slap in the face. I can’t even believe I’m fixing my hands to type that nonsense because I look at Zariah and just think this is my BEST FRIEND. God forgive me for even carrying such thoughts, but it’s genuinely how I felt. My partner was older than me but maturity-wise, at that point he wasn’t all there, so it wasn’t exactly like I could lean on him for support. Plus he was going through his own situation, the whole way through the relationship it was just me supporting him. But nevermind all that for now, the pregnancy. I immediately considered abortion. Culturally, religiously, morally, and in every other way possible, to me, abortion is an abomination. But I won’t front, I considered it, heavily. I was so conflicted because I’d had one before, aged 18 (again, another days story), but when I tell you, I have never regretted a decision as much as I did and still do that one. I didn’t think I could do it again, but at the same time I felt trapped with a guy who doesn’t treat me well, and who I know for sure is not the guy I’m going to spend my life with. If I had the baby, I was mentally accepting that I’m going to be a single parent, even though he’s there, because I’m not spending my life with this guy. I kind of knew how the story would go.

All of this is going on in my head, and I haven’t even told my mum yet. My mind was literally fried. My ex didn’t want me to have an abortion, but I think that’s only because he felt guilty for making me have the first one (I’m sorry for saying this a hundred times, but it legitimately is a longggg story that I will cover another day). The relationship with my ex was at breaking point, bringing a life into that situation was just not a smart decision that anyone could have planned, but hey ho, you might be thinking you’re going one way in life and God just slaps you in a different direction. I ended up telling my mum in potentially the worst way possible. As things with my partner were getting worse, our arguments were escalating. We fought physically (with violence coming from BOTH of us, not just him). Fights would just get more and more violent, arguments more spiteful, and the atmosphere more cold. I would ask him to leave so many times, he just wouldn’t budge. I called the police in a few of our altercations, but one day before work, a massive argument broke out, we ended up fighting, and I locked myself in the toilet and called my mum. She just heard hysterical crying, she was panicked and kept asking what was going on. My ex was outside the door saying God knows what, and I just ended up screaming down the phone “I’M PREGNANT”. God knows how my ex and I got over that situation that day, but all I know is I went into work ridiculously late, with a bloodshot eye, and was lying to everyone about how I got it.

My mum, bless her soul, was so supportive. She expressed clearly she was against me getting an abortion, and didn’t understand why I was considering one when only a few months ago I was singing my exes praises, talking about how he’s the guy I wanna marry and what not. I sat down and told my mum the wholeeeee story, and that was the first time I told her that I had already had an abortion 2 years before. But you know what, that woman is a rider. She knew what her values were and made her stance clear, but was willing to support me through any and every decision I made, as any mother should. I went to the abortion place a few days later, but my ex was messaging me begging me not to, and even without his messages, I don’t think I could have gone through with it anyways. So I left the hospital, and just like that the decision was made. I was keeping my baby…

As I’m writing this story, I’m realising there’s so many side stories that need to be told for you to fully understand this journey, but it honestly is another days job, because I’ll just keep you guys here reading forever kmt. But we move…

Me and my ex had a disgustingly massive fight sometime in June/July 2016, you would have thought we were shooting some WWE fight scene. It was ridiculous, there was choking, spitting, pushing, punching and everything else in between. We broke up from there. He actually tried to resolve it after that fight but I was so furious, I couldn’t hold any kind of mending conversation at that time. He eventually left and tbh that was it. We were done. My heart still loved him but I couldn’t bring my mouth to communicate anything other than “I don’t care” and “F**k you”. We were broken up, but he still came to the first scan at the University College Hospital in Camden/Euston area. The scan was nice, you know when you still love someone and the vibe is good, you forget all the spiteful actions and words that have been said prior to that. We went home together after that, excited about baby stuff, talking about gender, and baby shopping and all the nice things that come in early stages of a pregnancy. This was the kind of vibe that makes you forget you’re broken up. The sun was out, it was summer, he came back to mine, chilled, watched TV, ate ice poles, it was just good vibes, like old times. The first scan went well, there were no problems and we got our official due date – 2nd February 2017.

Don’t get it twisted though, one good appointment with my ex didn’t mean a damn thing. I did the pregnancy alone. He came to the other scan, where you find out the sex, but it was bitter sweet. He actually complained that we were having a girl, which kinda put a spoiler on the mood, and when I mentioned it, he said he was joking, and acted like I was the problem. In that same scan the doctor also referred us to have another scan as he thought something wasn’t right with the heart. The next scan, my ex didn’t show, and I was told that Zariah had a hole in her heart. They told me it was tiny and will probably make no difference, but any news that something is wrong as an expectant mother feels like the end of the world, I had to take that on my own, and cried on my way home.

Anyways lemme rewind a bit. I have a mental illness. Everything I’m saying right now just sounds like a recipe for disaster but I want to be completely honest about my experience and the timeline of events. I have a personality disorder which was diagnosed when I was about 17, but because of that, I had to have regular perinatal (mental health) appointments during the pregnancy. Everything was fine throughout the majority though. I quite enjoyed going to the appointments and speaking to the lady, it was an outlet I didn’t have anywhere else. My ex only wanted to play a part or help out if we got back together, which I didn’t want to do, and every time I tried to involve him, he would flake, and when I would ask for help, he would use the excuse of “you’re not my girl anymore” so he didn’t have to play a part. Majority of the pregnancy went that way. We would plan things, i.e. shopping for the baby, putting together lists of things we need, he wouldn’t show, we would argue, he’d say something spiteful or blow up and I’d block him. He spent half of the pregnancy blocked lol, and I did all the other stuff on my own or with my friends.

Overall, there were so many issues with my personal life at the time of my pregnancy, but the pregnancy in itself was fine. I was categorised as low risk and was planning a water birth. There was nothing wrong with the baby throughout (other than the hole in the heart, but medically, it was too small to make a difference). She was growing fine, all the appointments went well, I felt her move quite a lot in the early days, I got used to doing the pregnancy alone and I quite liked it. My skin was glowing, work was going well, the only real problem I had was my ex, who was super hurtful at times, but I distanced myself, and things went alright. He was ghost most of the pregnancy. His working situation was a mess so I always did everything financially alone, although he would talk of all the things he was gonna do for her, but in the back of my mind, I knew not to buy the dreams he was selling. When he did start working, he didn’t buy a damn thing for Zariah. Instead, he rocked up to my flat in a new North Face jacket. What the hell? I was out here putting everything into getting things for my daughter, which I was quite excited about, and my ex, who was begging to get back together, was using his money to buy designer clothes instead of putting even 20% of his money towards his baby? When I brought it up, he just argued with me. The whole “ur not my girl anymore” argument made it’s comeback. For someone who was texting and calling me everyday talking about he wants to try again, he sure used that line quite a lot. He would advertise himself as single on his social media, whilst texting me at the same time telling me he loves me and our unborn child and wants to be a family. Urgh, I look back now and just think what in the actual hell was I doing lol.

Anyways, back to the pregnancy. Summer came and went, we were into the winter months and February just kept getting closer and closer. Because of the mental illness, in that first perinatal appointment, they offered medication I could take whilst I was pregnant to help me manage. However, the doctor had said that no medication was 100% safe for the baby, and because life was going quite alright (aside from my ex), I wanted to go without. That decision came to bite me in the bum towards the end though.

I got bigger and bigger, but without medication, things began to pile on. I think for anyone pregnancy is a hard thing to go through, but it is especially hard when you’re on your own. I’m the kind person who likes to keep busy and keep moving. When I’m at home, it just gives me space to think about too much and I always end up feeling depressed. I lived a complete different life at home compared to when I was out in the world. From about 28/29 weeks, the depression started to follow me out of the house. I started calling the hospital antenatal line asking to be induced. Because there was no medical problems requiring me to bring Zariah in the world as a premature baby, the hospital kept declining. I look back a lot of the time and realise how completely naive I was back then. I was practically a kid having a kid, I never knew how serious having a premature baby can be, so I just kept asking and asking. Like I said, the hospital kept declining. In December, everything went to shit. I had started my maternity leave, and was getting closer to the due date, and honestly I don’t think I’ve ever been so low. Because I wasn’t going to work anymore, the only time I would leave the house is for the occasional hospital appointment or baby shopping trip with my girl. I spent most of the days indoors crying, self harming and asking to be induced. The end of December was the hardest. I reached my breaking point and the pregnancy was beyond miserable, my ex partner was absent, and only ever showed his face to argue with me and threaten me when I wouldn’t see his point of view. “I’m gonna take custody of her and call mental health and social services and you’ll never see your baby” was the most popular one. For someone that knew of my mental illness from the day he met me, his ignorance was still high as ever. He was spiteful as hell and would say absolutely anything to provoke a response.

Even though I did well not to engage with the back and forth towards the end of the pregnancy, it really did affect my mental health. I was breaking slowly. I couldn’t manage and I began to feel ill thoughts towards the pregnancy and the baby. I kept saying I just wanted the pregnancy to be done, and honestly, I’m not even sure what I meant by that. I stopped looking after myself towards the end. Stopped leaving the house, showering, eating, taking general care of myself or the baby. Everything in my house was neat and prepared for a baby. I built a chest of drawers, a new cot, a new wardrobe by myself. Bought a moses basket, washed, ironed and put away all Zariah’s clothes neatly. Despite me saying I wanted the pregnancy to be done and all sorts of nonsense, I had already prepared.

One day, I just remember feeling really low. I was desperate for my mood to change, as I could feel my mental health deteriorating. I just started feeling sadder and sadder, and then there reaches a point where I stop acting rationally, and can only describe my mood to professionals as “feeling shit”. Once I reached the point, I went to the GP, crying, looking like an unkempt mess, demanding pills. That obviously raised red flags, because the GP was not the person that told me I can just request these pills and they would give them to me should I need them, and even so, medication for your mental health often takes numerous weeks to kick in, making you feel worse before you feel better. At this point I only had like 4/5 weeks left of pregnancy, but I genuinely didn’t feel as though I would make it there. Once the GP told me they wouldn’t be able to prescribe me anything I just upped and left, which didn’t help because they became increasingly concerned and called the hospital and the mental health crisis team. When I’m in states like that though, I tend to isolate. I switched off my phone for days, and missed my perinatal appointment at the hospital. Because of my sudden lack of engagement, social services were called to assess my welfare and the welfare of my unborn baby.

& just like that, my unborn child was on the child protection register.

I mean, it didn’t happen “just like that”, there were a few things that were said and done before social services made that decision, but that’s another days story. But that decision there, was my worst nightmare.

Anyways, even though my mental health was struggling, I didn’t want to harm my baby, so although I disengaged with the mental health services, I kept to all my antenatal appointments, and made sure she was good, and she was. For the whole of the 9 month pregnancy, my baby was fine. We never missed any antenatal appointments, she was growing fine, I felt her kick and move around, she was the picture of health, until the 27th January 2017.

I’m really not tryna leave you guys on some cliffhanger Eastenders vibe, but I really need to pause. I feel like this story has been going forever, and I’m pretty sure I’ve kept everyone for way too long. If you are reading this, I will update the next part as soon as possible and try and get back to Zariah instead of everything else I’ve mentioned thus far. I just wanted to give an honest recollection of my pregnancy and how things were before the birth.

Again, thank you guys so much for reading, I’m still a little in shock at the response, but it really does mean a lot. I wanted to document this story because the stuff covered is not widely spoke about in our communities. A lot of the stuff mentioned, i.e. abortions and poor mental health is something that many people experience or encounter in this day and age but fail to speak openly about due to the stigma. Only after I was born did I tell the rest of my family that I had a mental illness, and even then, it was only because it was a condition imposed by social services in order for me to keep my daughter. The stigma attached is soo real. Anyways, thanks so much for the love, and anyone and everyone can feel free to message me about absolutely anything, should you want to comment or speak about something else. Feel free to share with anyone you feel this may help or inspire. Love x

Here’s the first picture I took of Zariah in the early hours of the 28th January 2017. I’ll update as soon as, and thanks again for reading x

This was the first time I ever saw Zariah. She didn’t look the same as any other babies in the Neonatal Unit and it broke my heart.

It’s Not All Doom and Gloom

So the past few days have been good… I mean, better. I took Zariah to her first live show (In The Night Garden) , was out and about in the sun, and didn’t spend too much time dwelling on the physiotherapists comments. Just a better weekend in general. Plus Zariah is crazy smiley, so you don’t really get much time to be sad.

I take my comments from my last post back though, about my mum. Turns out she’s amazing (God knows why I sound surprised). I told her about the results of Zariah’s GMFM assessment (the test therapists do to predict whether children will be able to walk independently), and we had a good old cry but we talked it out. She gave me great advice, and to be honest, it just felt nice to open up. Obviously, it’s a major deal and sometimes I still get teary about it, but the brain isn’t an exact science, so I’ve still got hope. I could NEVER give up on my daughter anyways, like eww, what even is that? If I haven’t got her who will?

Anyways, onto less depressing topics. I took Zariah to Hackney Empire today. Zariah enjoyed it, screaming at all the characters and what not, but legit there are some really nasty intolerable parents in this world. We’ve all paid for our seats, but we had a spare seat because Zariah can’t sit down on her own so she just sits on my lap. I kept Zariah’s bag and the souvenirs and stuff on the spare seat, and the seats next to that were occupied by another family. Zariah was excited, as you are when there’s a life sized Iggle Piggle jumping around the stage in front of you, and the place was full of excited babies and toddlers, so as you can imagine, it was a little noisy in there. Zariah screamed with excitement when the intro song came on, and she dropped her cup on the floor (her EMPTY cup). Next thing you know, this stubby little impatient man literally picks up his child in a huff, mumbles some nonsense under his breath and storms off! What the hell? Everyone was just looking around at him making a scene, whilst he literally dragged his toddler to go and stand elsewhere, where they remained standing for the duration of the whole show. I mean it doesn’t exactly hurt me, cos Lord knows I’m too big and lazy to be carrying Zariah standing up for an hour, but why so extra? Why make a scene? That’s not even a disability thing, just about having a little patience in general? The place is full of happy kids, if that makes you so angry there are other places you could be. Wanna be miserable? Go watch an Arsenal game or something, don’t bring that energy here. Butttttt, nevertheless, Zariah had an amazing time and it was really nice to get out in the sun.

Anyways, this late night thing needs to disappear because when Zariah wakes up bright and early at 7 something tomorrow, I’m going to feel like death. I just thought to continue the writing because it honestly made me feel much better after the other day, and I also didn’t want to portray parenting my beautiful girl as a constant struggle. She’s the most playful, happy girl and honestly being around her is a joy, but it is a lot, for anyone, and nobody tells you how low the lows can be sometimes. Anyways, onto better things, Zariah’s here for a purpose, and this is all part of God’s plan. We’ve got appointments every single day of the week this week so praying for a more productive week than the last.

Have a prosperous week guys.

P.S. Also, if anyone with (or without) kids, knows of any events or activities in and around London for toddlers and babies, give us a shout. Really trying to get out with Zariah more. Got into the habit of hiding away indoors, but don’t want to isolate my girl from the rest of the world just because she’s not able to do everything that other kids can. Sooo yeah, hit me up! Love xxx

And We Move…

So today, well yesterday now (31st May 2019), I was told that my daughter will never walk. How do you receive that blow? Like what is the next response? I look down at my beautiful girl Zariah, who is having the time of her life playing with these funnily shaped building blocks, and she has no clue. She’s completely oblivious, whilst her physiotherapist is explaining to me that she won’t be able to do any of the things you wish for your child. I don’t even know how to feel.

This is the first time I’ve actually said it since the appointment. I haven’t told my mum, my aunts, her dad, or my boyfriend (yes, they’re two different people). I don’t even think I’ve properly digested it. When the lady told me, I played it cool as hell, expression was blank and I just went on like I was expecting it. I definitely wasn’t, but I wanted to prepare for the worst cos I’ve been in that position before where you’re overly hopeful, and believe me, the let-down is e p i c. I didn’t want to expose myself to heartbreak or disappointment if the results weren’t what I was hoping for, but that’s exactly what’s happened and that’s exactly how I feel right now. Heartbroken. My chest is hurting. My spirit literally feels broken and I feel alone. You ever been surrounded by such a great support system but feel completely and utterly alone? Deadass by myself, crying in bed. It’s 3.17 in the morning and my daughter is asleep beside me, just being perfect. I even feel selfish sitting here talking about how I feel, when my daughter is the one with the life-limiting condition. She struggles everyday to do things that everyone else wouldn’t even think twice about. How is that fair? My daughter is suffering life long consequences as a result of someone else’s mistake. I try to stay faithful and I pray everyday, but why would God do that to her? To me?

My daughter is 2 years, 4 months and 4 days old (I legit just googled that). She is a GORGEOUS soul, she’s happy and she’s mine. She’s my best friend, my motivator, my literal heartbeat and my guardian angel. If you know what kind of a life I was living before her.. I was just lost, and she’s just given me purpose. I’m a new person thanks to her. I probably should have done introductions beforehand, but honestly I just started writing this because I needed an outlet. I haven’t told my mum about today’s appointment because I just don’t think I want to hear the typical Nigerian/African response just brushing the physio’s comments off. “She’s fine, you just need to pray more, open holy water, these people don’t know what they’re saying – she will walk”. I know my mum doesn’t mean to at all, but when she gives advice, she just makes me feel like I’m not doing enough. It’s hard as it is, I don’t want to feel like I’m failing.

Ooo, & just like that, the tears are back.

My daughter has cerebral palsy, as a result of mistakes made by medical professionals at birth, and honestly, I think that makes it even harder to digest. If things were done properly, would I even be here? Life would just be so different, Zariah would be active, and included in things, and speaking and achieving Lord knows what else. But she’s not. She’s being kicked out of a nursery she has been at since 4 months, because they “can’t cater for her anymore” and she’s excluded from practically every activity that her peers are doing because of her physical limitations. Oh no mate. Not my child. She will be accepted, loved, valued and nurtured by force by bloody fire. I think I’ve just gone over about 8 moods in the past 20 seconds, so I think that’s my cue to hit the hay, but this writing thing was therapeutic. I doubt anyone is gonna read this, especially cos I probably won’t share it, but if you are, thanks for reading and goodnight x